CONTROLLING YOUR OWN EPILEPTIC SEIZURES: MAKING SEIZURES HAPPEN
There is, of course, another side to this coin. If so many people have the ability to stop a seizure, it is not surprising that quite a lot find that they can make a seizure happen deliberately without too much difficulty. Many people know that they can bring on their own seizures by a direct act of will, by thinking or behaving in a certain way. Probably many more do the very same thing without realizing that they are doing so. If seizures start with a movement such as flexing a limb or turning the head, then mimicking the movement while mentally willing a seizure to occur may actually precipitate one. In one survey of people attending an epilepsy clinic about a quarter of the interviewees said they could generate a seizure at will. However, this figure is probably an over-estimate: a study of Swedish children with epilepsy found that 16 per cent could make themselves have a seizure if they tried. But, more importantly, allot these children said that they knew the circumstances in which they were likely to have a seizure.
Lucy’s father died when she was 14. At the time she was intensely miserable, and used to lie on her bed every evening crying. Lucy had epilepsy, and she found that often when she was feeling very sad she would have a seizure. She came to welcome these seizures because they meant that for a short time at least she was unconscious and therefore free of her misery.
Eventually Lucy got over her father’s death. For several years her seizures were well controlled. Then, seemingly out of the blue, one evening she started having recurrent seizures and was taken to hospital as an emergency. Afterwards, when questioned closely by her doctor, Lucy admitted that she had recently broken up with her boyfriend. The day of her hospital admission she had been lying on her bed, feeling very sad, just as she had when her father died. She had had a seizure, and felt that in the seizure she was able to escape from her sadness. Coming out of the seizure she was overwhelmed by misery once again and had allowed the sad feelings to sweep over her, knowing that it would result in another seizure . . . and another . . . and another.
People who have discovered that emotional mental states such as sadness or resentment can cause seizures, for example, can often ensure that they have a seizure by deliberately thinking about things that they know make them feel sad or resentful. It is not unheard of for children to use this kind of ploy when a parent is angry with them.
Some people find that deliberately keeping their mind blank can precipitate a seizure. You may discover quite by accident what particular movement or mental activity always seems to start a seizure off, or that you can will a seizure by manipulating your attention or thinking certain thoughts. It is very common, for instance, for people to have seizures when they are thinking or talking about seizures.
There is thus a very fine line between deliberately inducing a seizure and allowing yourself the luxury of a mental state or a behaviour that you know is likely to induce one.
It would be nice to be able to say that there is a good chance you may be able to control your epilepsy completely by using behavioural methods. Unfortunately, this is not very likely. These self-help methods are not meant to replace drugs, and you certainly should not stop taking your drugs if you practise them. But they are a useful addition to more conventional treatment.
A complete treatment of epilepsy does not involve just taking drugs. It means learning how your feelings, thinking and behaviour can all be used in the control of your seizures. You will not then be nearly so much at the mercy of your epilepsy. You will be able to gain some mastery over your seizures instead of letting them control you and dominate your life.
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